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    4.2cm Ascending Aortic Aneurysm, BAV and Burn Boot Camp??

    Thanks so much for all your responses!! I've decided not to do the Burn Boot Camp. I do brisk walking that includes 3 steep hills for 45 minutes 5 days a week, plus some very light weight lifting. I think that's enough for me. I also have been trying to cut back on carbs. So hopefully I'll...
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    4.2cm Ascending Aortic Aneurysm, BAV and Burn Boot Camp??

    Hi everyone......seems the latest fitness craze is Burn Boot Camp. At least in my neck of the woods here in NC. For $150+ a month, you can go to a 45 minute class M-F run by these ultra buff muscle-bound trainers that will make you do crazy exercises till you pass out in order for you to become...
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    Imaging center vs. hospital---cost difference for MRI?

    Thanks so much for your info. I appreciate it.
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    Are you ok to travel home after Ascending Aortic repair surgery (fly or drive)?

    Hi everyone, I will eventually need surgery to repair my ascending aortic aneurysm (currently at 4.2 to 4.3 cm) and possibly also my BAV if they decide to just repair both at the same time. I live in Charlotte, NC but I'm planning on traveling to Cleveland, OH to the Cleveland Clinic to have...
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    Relationship of BAV and Cerebral Aneurysms

    Hi all....this is an older thread, but I asked my cardiologist specifically about this and thought I'd share what he told me. Back in 2012, I asked my Cardiologist this question. He said that the gene that codes for the connective tissue for the heart (valve and aorta) is different than the...
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    Imaging center vs. hospital---cost difference for MRI?

    Hi everyone, I have to have another chest MRI with contrast next year for my ascending aortic aneurysm. They have to check the measurements of it. Praying it's not larger. I know the last time I had this done at the hospital the cost was $2000 for the exam. I just found an imaging center in...
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    Riding roller coasters/ amusement park rides with BAV and ascending aortic aneurysm

    Hello everyone! I'm taking my children to Disney World this summer. They've told me they want to ride the roller coasters they have there as well as some of the other "wild" rides. I have BAV and an ascending aortic aneurysm of 4.2 cm which is stable. And I'm on blood pressure meds. I'm in...
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    Introductions, questions, frustrations ....

    AZ Don......I hear what you're saying about having a hard time understanding what the Dr's are listening to. I have the same feeling. Even after I found out about my heart problem and made other Dr's aware of it during exams, they would look at me and say, "I don't hear any heart murmur." I'm...
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    Innacurate Echo leads to unnecessary scans/high bills...what would you do?

    By the way, ski girl.......I like your suggestion of asking for a repeat echo (with a different tech, of course). I will do that if I find myself in this position again. Once bitten, twice shy.....Ha!
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    Introductions, questions, frustrations ....

    Your situation is very similar to mine. I found out at age 32 that I had a congenital bicuspid aortic valve and an ascending thoracic aneurysm. This was after going to the Dr for a sore throat and they said, "oh, by the way, you have a heart murmur." I had no clue up to that point. Always...
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    Innacurate Echo leads to unnecessary scans/high bills...what would you do?

    Thanks for all your responses. I do have insurance, but I have the high deductible plan so my bills get lowered a small amount, but I'm still out of pocket for most of the bill. I definitely can't afford to take a $4300 hit all at once. I think you all are right. I think I'm on the hook for...
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    Innacurate Echo leads to unnecessary scans/high bills...what would you do?

    All of us heart patients have to undergo lots of diagnostic testing....particularly if we are being monitored until surgery becomes necessary. I had an echo which indicated that my aneurysm was a lot larger than it was the previous year.....a 4.2 was showing as a 4.8 on the echo. My Cardio...
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    Shopping around for low cost MRI--Anyone have experience?

    Thanks for your suggestions Lyn. It was very helpful and I appreciate it.
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    Shopping around for low cost MRI--Anyone have experience?

    Happy New Year everyone! My New Years resolution was to find a cheaper MRI facility. I live in Charlotte, NC. Long story short is that I had an echo done at my local hospital right before Thanksgiving and the echo showed that my Ascending aortic aneurysm had grown to 4.8 cm (it measured 4.2...
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    BAV patients who end up with aortic graph

    Hey there Ctyguy..... I've heard of some people getting an aneurysm after having a BAV repaired. My Cardio told me that the gene that codes for the aortic valve also codes for the section of the ascending aorta right above the valve. So if there is a hiccup with that gene that caused the BAV...
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    Can you trust an echo to be accurate?

    That's exactly what it is. Imagine if you took your car in for service and the service guy came out and said your engine was blown and you have to buy a new car. So you panic about having no car, and then find out afterwards that it was just a small problem with the ignition. You'd never take...
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    High cost of yearly MRIs--so why not operate early and fix it for good?

    Now if only the MRI were the same price as the echo, I'd be happy.
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    Can you trust an echo to be accurate?

    Thanks Bryan B.....your info is very helpful. I've had 2 CT scans, but my Cardio decided he did not want to do CT scans yearly, or even every 2 or 3 years due to the radiation exposure. Since I'm 39 and would have many more CT scans before I reach old age, he was concerned about cancer from...
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