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  1. J

    Still waiting

    Your last post is the best ever! I just know you will be happy and amazed at how you are treated in Rochester. As for the sleep apnea testing and other recommendations, my pcp wanted me to go back to a gastroenterologist( just had a clear colonoscopy middle of September) so I went ahead and...
  2. J

    Staying the Course -- 12/18/2017

    Good morning all. Time to check in as I have missed some time here. Groups are a GOOD thing, especially in accountability. Really helps to stay that course! My weeks have been filled with tests, blood transfusions(even lost count of how many), specialists, and ups and downs. My bone marrow...
  3. J

    Still waiting

    mom2angel the medical system is a tough one to follow. I had my AVR a year ago at Mayo and was I ever busy taking care of most all of it! Insurance company said I needed a pcp so I got one. He always has seemed half afraid of my heart and would walk and talk in circles it seemed. I finally...
  4. J

    Staying the Course -- 12/04/2017

    Hello hello I am here also and glad to see the ones that are here. Mr. and Mrs. Superbob healing prayers. HB thanks for the tips on nutrition. I need to get on board with them asap. Anne, you sound like a busy Christmas girl! Enjoy the holiday spirit. Oh Steve I think your Christmas plan...
  5. J

    Staying the Course -- 11/27/2017

    Morning all. November seems to have been a busy month for most all here. Keeping up with our cardiac care, other health issues, families and holidays make the time move quickly. I hope that everyone here gets to feeling better all the time. November has brought me 3 blood transfusions, a...
  6. J

    3rd Valve Replacement stories please

    Second valve replacement November 1, 2016 at Mayo Clinic, Rochester MN. Dr. Richard Daly was recommended to my by cardiac surgeon in Billings, MT that had worked at Mayo before moving to Montana. Mechanical ON-X and all went well. Great care. Since you have already been there I won't have to...
  7. J

    So when did you all feel "normal" again?

    This report sounds pretty good, I think. Had that bump with first valve replacement and was about 6 months before it went down. Second replacement they must have done a better job or put a hinge on it as it wasn't much of a bump even. I have some pain med stories and also some cursing ones...
  8. J

    Successful AVR - Info for anyone getting close to surgery, or with Acute Stenosis

    Your story is a good one for all to read. Wishing you the best in your recovery. WTG on keeping an eye on things and having your check ups. i have a year old ON-X and have no experience with afib(not positive if I know how that feels) . A few people here, like Andy, post on their...
  9. J

    Just so I don't miss it - 27 years tomorrow!

    Wow, I was sure I posted to this have to just say sorry I did not check back on it. CONGRATS!
  10. J

    Staying the Course -- 11/20/2017

    Good Morning. Staying the course and typing this message as part of being as positive as I can at this time. I am very thankful for the family I have that continue to stay by my side and offer up texts, pictures, and phone calls when I need them the most. The kids are all well in health and...
  11. J

    Missed my anniversary again - 3 years yesterday

    Missing this anniversary is ok in my book. It means you don't have time because you are so busy living it. Congratulations!
  12. J

    Staying the Course -- 11/13/2017

    Dornole, in regards to hemochromatosis here is a bit better way to explain it for my particular case. Hemochromatosis was first identified in the 1800s, and by 1935 it was understood to be an inherited disease resulting in iron overload and deposition. Today, hemochromatosis is defined...
  13. J

    Staying the Course -- 11/13/2017

    I have been year round in the sun the last 8 or 9 years and still have vitamin D deficiency. I think more people are than aren't. . (my own personal thoughts) Fred I wish you well on mole surgery. Had a brother with several carcinomas from the sun but luckily he had them taken off and no...
  14. J

    Staying the Course -- 11/13/2017

    Agian, I assumed ferritin is ok. My hemoglobin should be around 12 to 15 but was 7 at both of last two tests 2 units first time and two weeks later, one unit. colonoscopy and endoscopy both clear mid September. Primary did a "smear" of some kind and said all tests look ok except hemoglobin...
  15. J

    Staying the Course -- 11/13/2017

    Wow it is a hard act to follow........Superbob AND Superman! both of you seem to be doing well staying the course. Medical procedures and weight management seem to be at the top of most of our lists. Good luck and good job to you both. I didn't get out of MT yet. Had my blood checked again...
  16. J

    Saw excellent cardiac surgeon

    Oh Anne such a great post to read. Year and half ago I had all the tests and then the cardiac team at Billings hospital met twice before they met with me to give me all their observations and also to refer me on to Mayo. I felt really comfortable with decisions made when they worked together...
  17. J

    Staying the Course -- 11/06/2017

    Good morning friends on course. Glad you are getting that trigger finger surgery and like Steve said I think you will do great and be glad to have that fixed. My friend felt the same way as his. Fall, winter, snowblowers, and changing clocks are in a lot of our plans right now.. Seems so...
  18. J

    18 months Nov 3rd

    Trina congratulations on your milestone! My one year was November 1st and I remember that operating room well and agree about the miracle we have gotten. I have a mechanical valve and had echos done at Mayo right after surgery. Fast forward 6 months for next echo. My cardiologist said my heart...
  19. J

    Staying the Course -- 10--30--2017

    Look at that cute "prisoner"! Poop or not, such a prize worthy costume! Thanks for sharing and a big WTG on that 4 lb. loss!
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