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It’s in my “inbox and sent messages” part of the app from “HVI Resource Nurse.” It was sent to me almost two weeks after surgery. My cardio halved my dose and then I think I took that for a week or two before going off of it completely. He also told me to eat a banana every day. He thought the...

Hi Amy! CC had me get post op echo 4-6 weeks after surgery. I had my echo at four weeks because when I would lay down at night, my pulse slowed down SO much. Told my cardiologist I had concerns, and he saw me pretty quickly for echo. Turns out it was the metoprolol. Would def do that post op...

Hi! I’ve had my on-x for 14 months. Congenital BAV (found out from a TEE I actually had a Unicuspid valve). Diagnosed with it in high school. 31 now. Warfarin is fine. Helps to set a daily alarm (or two!) on your phone for a reminder if you need to in addition to pill box. Test at home weekly...

Hi Mark, I’m from Baltimore. Now live in NY. Have cardiologist in Baltimore and one in NY. Had my surgery at Cleveland Clinic last year. Surgeons are terrific obviously but what also sets CC apart from other hospitals is the care you receive before and after surgery. There was a phlebotomist...

I want a ring! Just emailed Suzanne. She got back to me very quickly. She did confirm that she still has some rings left, and she will send me one but that she thinks the process is changing soon. She asked for ring size, cardiologist name and mailing address. For anyone interested in a medical...

Any of those surgeons will be great. I only met two before surgery. There are people on here who have had great outcomes with all of the surgeon names listed above. If you send them your echos and he thinks it’s time for surgery, you’ll meet with him the day before surgery. I assume- unless...

Congratulations!!

@Amy I read a lot/watched YouTube videos. At the beginning of my process, I thought I’d want a bio valve. He and Svensson really like inspiris resilia but both still do mech replacements regularly. CC was one of the first hospitals to use inspiris resilia. Dr J said he does about half bio and...

Hi! I have Invisalign with a mechanical valve. Haven’t been told to take antibiotics unless I’m at a 6 month dental cleaning.

@Amy I requested Dr Johnston at Cleveland Clinic for mine. He met with me in November of 2019 and had me do a stress echo. I had surgery three months later. Johnston is in a lot of vids you can watch online. There’s ones with Svensson and Johnston together too. Johnston said he does about half...

Hi! I’m 31 and female. When I found out I needed surgery last year, my thought was that since I’m going to hit my deductible, I’ll get my surgery done wherever I want. Highly recommend Cleveland Clinic. The surgeons will let you decide on valve choice and have experience with both valves. I had...

SO happy to hear this @Unicusp !! Thank you for the report! Cleveland Clinic is amazing. Nice to hear about on-x. I was and still am surprised by how quiet it is. Happy for you!

I had surgeons who brought up mechanical, bio or Ross. I second the advice to choose whatever makes you sleep at night. After I ruled out Ross, I took a couple months to read everything I could about both mech and bio valves, and I talked to people about both options. After doing this, my friend...

The only “negative” of having my surgery already and getting my valve replaced is that my cardiologist says I’m no longer in the “high risk” group to get a covid vaccine so I probably have to wait until Summer to get vaccinated. LITERALLY that has been the only bummer because I want to get...

Update - I've been taking 400mg of the "Doctor's Best" chelated glycinate for about a month now. No issues so far and no effect on INR. Have had one migraine in a month. Not sure if that is related to the new form of magnesium, but I'll take it!

haha!! That’s great @Superman . Not long after I woke up in ICU, I remember asking a nurse if I could have some Gatorade so that I could “have something to look forward to.” I don’t drink Gatorade so I have no idea what that was about but apparently I felt that Gatorade was special.

@KatherineA love this insight. BTW my introduction to Reiki was at Cleveland Clinic in the hospital room a few days after OHS. Reiki is amazing!!!

Leading up to surgery was definitely the most stressful part of my life. I was also convinced I would die. YES to therapy. I just started seeing a therapist almost a year after my surgery and the main take away I have right now is “I should have seen a therapist SO long ago!” I needed help as...

Thinking of you! Look forward to hearing from you after surgery.

Great to hear. Thank you for sharing!