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Jwinter seems like more and more that we have the same issue bleeding issue have they not ever diagnosed you with angiodysplasia is all through the GI. a recent letter from my internalist to the cardiologists in response to possible tissue valve replacement "he writes Harriet's main issue...

Yay !!! It worked today .. Strange l had that problem before l voice text everything and copy because l am just not good at rewrites hahaha !!

Pellicle hello hope you are well enough .. upon Awakening this morning the first thing I received was a phone call from Foothills from my potential surgeons assistant and the assistant from my surgeon from two and a half years ago they have set an appointment date for September 10th to go for...

Pellicle/ Ann Not cool .. l did copy and paste it denied me l will try again to get out my update thx

I tried reposting and it was denied ?? Anyone know what's going on ?

why was my last post marked as spam ??? & waiting for a mediator to approve it

Hello friends just an update on visit with Cardiology so I think I explained that I went to Calgary had another assessment with a new cardiologist her opinion is that there's no question that they need to go in take out those mechanical valves and replace with tissue valves. She was going to...

Just thought I would add my two cents. My surgery was January 2016 I experience terrible migraine headaches and vision problems for the past two and a half years I have many other issues including internal bleeding / angiodysplasia approximately 100 transfusions in the past two and a half years...

Jmprosser.lab hi so yes I'm very grateful that they spend so much time with me I have not heard back from them I did stop at my family doctor and pick up a copy of my echogram that they did which doesn't really match up to the other two that I've had recently so I don't know why the difference...

ottagal oh my goodness yes Thank you so much for your hugs and well wishes. Deffinetly will keep you all posted Xx

Paleowoman hi hope you are well ! Thank you and you are right .. I still cannot believe they spent so much time with me. I felt validated for the first time is l can't remember when. Like l was important enough for them to hear me for the first time. Xx

Jimmyk Yes seems to be quite common. I read your update the other day hope you get to where you need to be so you can get home. I would rather be anywhere than in hospital. Take good care and heal well .. I will update as soon as l here back from them.. My decision certainly is not going...

Trinalovescats hi sorry about your resent news. Yes me Aortic mechanical replacement & mitral valve repair Jan 5 /16 within 3 mths valve was in sever regurgitation ... So upsetting as it was initially to be replaced however after surgery was diagnosed with angiodysplasia a bleeding disorder...

Hello friends update on second opinion new cardiologists at the request of my surgeon recap possible mechanical aortic removal and tissue valves for aortic mitral ( existing repair ring prosthetic) and now tricuspid Reason continual bleeding due to angiodysplasia which was diagnosed after open...

Jimmyk Sorry to hear you've been having a rough time. That darn bleeding .. That darn Coumadin !! Bleeding ulcers at least they may have you under control at the moment. Hope thing work out going forward !

Eva your a sweetheart thank you ! Hope you are well Xx

Oh one more thing jwinter we do know where the bleeds are I had a pillcam 2 years ago it showed all the bleeds. I have been cauterized a dozen times either endoscope or one end or the other we have cauterized the bleeds many times. February the end of February I had seven bleeds cauterizing...

Thank you jwinter l have alot of pressure since valve replacement surgery I will say l have been in such excruciating pain due to pressure around my esophagus and swelling I read that last night and haven't stopped thinking about it. I have pulmonary hypertension which I know is different but...

jwinter Hello and thank you !! you have most certainly been through a quiet the ordeal. I am sorry you have had to go through all of that. You mention one thing that stuck out to me I have a heck of a time with my iron we can't seem to get it up we can't get it to stay up for over a year my...

honeybunny Hello Thank you ! I will Xx back at you