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Hello friends Thank you for all the comments and messages on my last post and for the Thoughts and Prayers on the passing of my mom 2 mtg ago today ... I miss her terribly! After my last post l checked into hospital where l spent 2 weeks before they transported me to Calgary whee l remain now...

Thank you all so much for your thoughts and prayers. I am so overwhelmed with everything. My life is a mess my business is a mess and l just literally cannot catch a breath. Been running back and for for 3 mths living out of a suitcase which is still lying on a chair in my living room. Doing...

Warrick hello Thank you for your condolences. Yes exactly that .. Replace Aortic Tricuspid Mitral valves with bovine .. Just like that .. Sounds simple enough .. Actually it's terrifying to me. The surgeon is confident he can get me through.

Thank you Ann Xx

Hello Freinds I'm kind of hit and miss around here. But here's a recap .. Jan 5 /16 OHS Valve Replacement Aortic Mech Valve and Mitral Valve Prosthetic Ring . . Immediately after surgery Internal bleeding started exasperated by Warfarin. To date approx 140 blood transfusions. (Angiodispla)...

Thank you vitdoc I believe l may have misunderstood this post or took it out of context. As to the actual valve causing the damage to red blood cells. Mine is a completely different matter. I have had 4 second opinions 3 agree to redo replace mechanical with bovine. One disagrees .. This redo...

Thank you Paleowoman I come and go depending on where lm at and how thing are going. Alot of changes here in the forum l see. Hope you are well enough !

I also suffer from anemia .. Although it is not. St jude valve but mechanical no less. I had ohs aortic valve replacement in January/2016. The first 6 mth post op l received roughly 30 transfusions. We are at 3.4 yrs and l have received I've 130 transfusion s easily. So transfusion dependent...

Seaton Hello Sounds like you have made a decision Congratulations on that and the hopes that everything goes smoothly. I think you made a very wise decision as l know they are sometimes so hard to make. Bleeds as you know can be exasperating. The thought of No warfarin would be a dream come...

Paleowoman hi hope you had a great Vacay You keep sending me this msg to empty my messages that my inbox is full .. l have sent you back several msg telling you it is not l emptied cleaned out and it is not full. In the mean time and by doing that have lost some good information that has...

Paleowoman thank you .. Cleared Xx

honeybunny Thank you! Hope you are doing well ❤

Matters of the ❤ #memberofthebrokenheartsclub After over 2.5 yrs since Open Heart Surgery & over dozens of test scopes & over 100 Blood Transfusions & 100's of Hospital visits & many Hospital stays .. Countless Specislists Hours of Consults & much deliberation. I have met with my first surgeon...

A very quick update Finally Sat down with my regular internal medicine doctor who's followed my case for the past 5 years who has been managing my angiodysplasia and my INR xcetera. So I went in for a consultation to talk to him about my upcoming consultation with my new potential surgeon 2 take...

Marie-62 hi Marie it is ok to melt down l think we all do it .. I do it alot !! And not very Gracefully l might add. But it is ok. Good for you The Strongest of Warriors fight the biggest of Battles and we do it the best way we know how. There is no right or wrong way but important to go through...

Congratulations !!

Congratulations Don't you love it when their wrong

Zekmoe Hello l experience the same thing now since my Jan5/16 surgery. I sweat profusely sweat and then cold clammy skin it's gross I also have pulmonary hypertension which I think is a symptom of that but maybe it's strictly from the heart valve replacement I can't say for 100% l too used to...

Jwinter You're a true worrior! I couldn't imagine having all those other issues on top of this. I would be very interested in hearing what the results of your test and your consult back from Mayo have to offer you. I hope you share that. It may help me some how. Pellicle is a wealth of...

Pellicle Hahahaha oh my goodness how l have missed your sense of humor your attention to detail and your voice of reasoning. I do appolagies for my 100 word sentences .. Lol l was so afraid it wouldn't post if l stopped to edit my voice to text .. Lol. You certainly did break it down for...