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  1. johnnycake23

    27-Year Anniversary of First AV Repair

    It was on this date in 1993 that I had my bicuspid aortic valve repaired at the Cleveland Clinic. I remember being a scared twenty-something and, looking back, terribly naive -- my biggest concern was if there would be a noticeable scar! Ahh, to be that young and carefree again. (I would go on...
  2. johnnycake23

    Are we high risk?

    I'll jump on this D train. With my long track record, only in the last year or so was I advised to take 2000 IU of Vitamin D cuz my blood tests showed me a bit low. I don't think I've felt its positive effects, but now I'm in normal range. So there's that.
  3. johnnycake23

    Αortic valve replacement

    Περαστικα, και θα είσαι καλά. Έίμαστε Έλληνες και είμαστε δυνατοί.
  4. johnnycake23

    Allow me to reintroduce myself...

    You are a true profile in courage. Thank you for sharing your story. Please continue fighting and keep the faith.
  5. johnnycake23

    News video on TAVR

    Thank you for posting, @honeybunny—I watched with great interest, as I’m always on the look out for the latest on TAVR—and for all your insights, @pellicle and @Duffey (excellent posts, the both of youz). I just got the results back from my echo last week. All “looks great.” No change from two...
  6. johnnycake23

    What's the longest someone's bovine aortic valve has lasted?

    Duffey, 14 years is great. I'm at 12, so this is encouraging. I haven't gone through the entire thread, but I wonder, as the subject heading asks, What IS the longest someone's bovine valve has lasted?
  7. johnnycake23

    12 Years Today

    Mr. Kent, my first OHS was a repair at Cleveland Clinic in 1993. It lasted till November of 2007, when it got replaced with a C/E bovine valve. Thanks for asking.
  8. johnnycake23

    12 Years Today

    Hey Steve, Thanks for the well wishes. Going to FLA makes perfect sense. Coming back now, not so much. Just couldn’t resist the misery that awaits us from Old Man Winter? Yeah, getting together sounds great. You’re in the city, right? I’m contracting in the city these days. Lunch or happy hour...
  9. johnnycake23

    12 Years Today

    "From your mouth to God's ears." Just in case you have some juice with the Big Guy :)
  10. johnnycake23

    12 Years Today

    Thank you, pellicle. From your mouth...
  11. johnnycake23

    12 Years Today

    Fellow Valvers, Today marks 12 years since I had my second OHS for my bovine aortic valve replacement. Big thanks to the team at Northwestern Memorial Hospital who got me this far. As of last check up the valve was holding up just fine. I go in next month for my annual echo hoping there's no...
  12. johnnycake23

    Skipped Beats Gone, Replaced with Hard Beats

    Thank you, Steve (and everyone else). I appreciate you taking the time to share your experiences and to allay my fears. I thought I'd give a brief update. I had a pretty bad weekend of skipped beats, so on Monday morning I called my doc's office and was instructed to come in to get a heart...
  13. johnnycake23

    Skipped Beats Gone, Replaced with Hard Beats

    My situation is not any better. The thing is, now I experience both: sometimes it’s skipped beats, other times it’s hard beats. My electrophysiologist told me my magnesium levels were in the “low range of normal.” So he put me on magnesium, 400 mg twice a day. Been taking them for two days...
  14. johnnycake23

    Skipped Beats Gone, Replaced with Hard Beats

    Tom and Eva, thank you for your replies. Very interesting information, especially how sleep affects the cardiovascular. That would explain a lot. Honestly, I hope that's all it is. When I saw my electrophysiologist on Wednesday, he said my halter monitor showed actual SLOWING of the heart rate...
  15. johnnycake23

    Skipped Beats Gone, Replaced with Hard Beats

    Hi all, For the last few months I’ve been feeling skipped heartbeats. When I was in my electrophysiologist’s office, naturally they weren’t happening then, so the EKG was negative. I then saw my cardiologist who said it’s not the bovine aortic valve—“the valve sounds fine.” (It’ll be 12 years...
  16. johnnycake23

    Going in for #3

    Best of luck to you, Professor White. I know I'll be going in for my hat trick OHS someday in the hopefully distant future, so I'll reach out to you when that time comes for some words of wisdom. In the meantime, be strong. We are pulling for you.
  17. johnnycake23

    Meditation Recommendations

    Thank you for the recommendations. I will see what forms of meditation work for me, if any. I appreciate you sharing your thoughts.
  18. johnnycake23

    Meditation Recommendations

    Greetings, I occasionally get palpitations (like the ones I'm having as I type this) and I want to try meditating to help alleviate the irregular heartbeat. I was wondering if anyone out there has a good recommendation for a specific technique to help with this issue. I've dabbled in meditation...
  19. johnnycake23

    Tissue Valvers. How Old is Yours?

    My bovine aortic valve will be 12 years old this November. Passed a stress test in January and "all sounds good" on last check up last month. Fingers firmly crossed, of course. Daily!
  20. johnnycake23

    Tissue Regrets??

    I've read every word on this thread, and my reaction is: You guys rock! That you would take time out of your busy days to help a complete stranger who is feeling a little uneasy is truly humbling. And guess what--your efforts were not wasted. I went to bed last night feeling better than I have...
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