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  1. Gail in Ca

    Diminished running ability after mitral valve surgery.

    After my mitral repair w anulplasty ring I felt so good. I was back to walking briskly with my dog up hill, no weird pressure on my chest. I felt back to normal. But, as a few yrs went by, I noticed the symptoms returning when I walked. My valve was leaking moderately. I was in chronic a fib 5...
  2. Gail in Ca

    NEWBIE: Needs advice

    After each of my 3 surgeries in 20 yrs, the recovery time followed what I was told after surgery. I was sickest (congestive heart failure) going into 2nd surgery and coming home too soon, really, but I recovered about the same. After 3rd surgery, I actually drove sooner than recommended since it...
  3. Gail in Ca

    Lancets for Coaguchek Softclix lancet

    I recently got a new lancet device from Acelis that supplies my strips. My old Accuchek finally broke and I was able to get a new Coaguchek device with no out of pocket costs. I see on the paperwork that you can use Accuchek lancets with the Coaguchek Softclix. I noticed when I got the new...
  4. Gail in Ca

    My 15 yo daugther - soccer dreams on warfarin

    I remember watching my short, thin daughter play soccer. She loved it and was very fast. She had no health issues, no warfarin, etc. Her high school team went to another city and played girls that were so much bigger and muscular. They couldn’t catch her as she ran with the ball, but they could...
  5. Gail in Ca

    Going in for 3rd OHS in 2 weeks at Cleveland Clinic

    I’m sorry you’re having minor complications but I’m glad you are well enough to post and you got mitral replacement instead of repair. I’m one of those whose repair only lasted 8 yrs or so. Just walk a lot if you can and stay positive. Nurses like positive patients who want to get better!!
  6. Gail in Ca

    Birthday

    Thanks, all! I had a great birthday at Flappers comedy club!!
  7. Gail in Ca

    How do you prevent endocarditis and blood infections?

    I find it fascinating how often I see used floss piks on the sidewalk, elevators, parks. They’re the new cigarette butts of trash!
  8. Gail in Ca

    Birthday

    It’s my Birthday today. I’ve now had an artificial aortic valve longer than I had my native valve! Thank you Doctors who have kept me going!!
  9. Gail in Ca

    Blood shearing

    Even though my repaired mitral (anulplasty ring) is leaking mod to severe, I made a point of asking if it was my mitral or aortic valve causing this blood issue. My cardiologist said he thinks it’s the aortic valve. I have an echo and another appointment in July. So I’ll have more questions and...
  10. Gail in Ca

    Blood shearing

    I’ve had 3 surgeries in 20 years. It’s been 14 yrs since my 3rd surgery. I didn’t know there was a patron saint for heart disease. I’m a Lutheran, so am open for prayer!
  11. Gail in Ca

    Blood shearing

    She’s gone thru a lot for her young years. Was her mitral repaired w anulplasty ring? My high results: MCV, MCH, RDW, lactate dehydrogenase, reticulocyte. Low:RBC, Hemoglobin, hematocrit, MCHC.
  12. Gail in Ca

    Blood shearing

    Yes, I have hemolytic anemia. My hemoglobin is low, reticulocytes high. Other numbers off, too. My iron and folic acid are in range but he wants me to take iron QOD. I’ll have another echocardiogram. Two cardiologists I’ve seen here have said another surgery is not an option for me. My...
  13. Gail in Ca

    Blood shearing

    My mechanical valve is shearing my blood cells. My blood numbers have been going down since 2018. My newest cardiologist thought my valve is probably the culprit. I started seeing a new GP and asked her to check my blood. Everything was off, so she sent me to a hematologist. More blood tests...
  14. Gail in Ca

    A-Fib after Aortic Valve Replacement

    My chronic a-fib started 3 yrs after my 3rd surgery. The cardio version worked for 2 yrs. my a-fib came back in 2014, cardio version didn’t work, so I’m in a-fib all the time. Couldn’t have ablation as I have mechanical valve. It’s not bad living with it. I was already on warfarin, so no more...
  15. Gail in Ca

    How do you prevent endocarditis and blood infections?

    I was just living my life, taking amoxicillin before dental appointments sometimes going barefoot in backyard, but living healthy. I got bacterial endocarditis on Halloween in 08. I had no cuts or visible wounds. The bacteria I got lives on the skin of 20% of population. At that time I was told...
  16. Gail in Ca

    Dacron Graft Life expectancy

    Yes, in 89 I had ascending aortic aneurysm and leaking aortic valve. Surgeon replaced valve and placed a Dacron graft separately as he didn’t want the coronary arteries involved. I had another aortic valve (mechanical to replace porcine) in 00. They left graft alone. But, everything was replaced...
  17. Gail in Ca

    Dacron Graft Life expectancy

    I only needed my Dacron graft replaced after 20 yrs due to bacterial endocarditis. The aortic valve needed replacing and the valve in graft procedure was the best for me, so the surgeon just took out the old valve and graft and replaced them. I got a hemashield graft.
  18. Gail in Ca

    The Cost of Doing Business

    I have had surgeons that were very confident and made me feel like I would survive. My 1st surgery was aortic valve and Dacron graft in ‘89. I was told the risk was 5%. My 2nd. surgery I think was about the same risk. But my 3rd, after bacterial endocarditis, was riskier and I didn’t research...
  19. Gail in Ca

    Aortic valve replacement with thoracic aortic aneurysm

    I’m one that has had my mechanical valve replaced, due to bacterial endocarditis which damaged the tissue around the valve. I was given a valve in graft created by my team during my surgery. No plucking one off the shelf for me! This 3rd surgery was the first that involved my coronary arteries...
  20. Gail in Ca

    Moderate Mitral Stenosis / Mild Regurgitation

    My cardiologists and surgeon have always been conservative when it came to addressing my leaking mitral valve. It was noticed as mild when I had my 1st surgery at 34yrs to replace aortic valve and aortic aneurysm w graft. It was leaking moderately at 46 when I had my 2nd surgery, replacing my...
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