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  1. J

    A seemingly common question.......Planning head on

    Yeah apologies ignore the future options. I guess nobody knows in twenty years by which time I would be seventy. In all reality I'm looking a the best lowest risk option to allow me to see my girls grow up some more, whilst affording me the best quality of life. Its a tough balance with the...
  2. J

    A seemingly common question.......Planning head on

    I require AVR + Ascending Aorta replacement + possible root (They all said they will see once the bonnet is open). I have spoken to three surgeons and had three answers. 1. Definitely Mechanical at your age (50y) 2. Latest generation Tissue with future TAVRx2 possible or 3. What ever you want...
  3. J

    Whats the point.....................

    'my sisters husband died ( he was part of the 2%)' Was this in reference to him having heart surgery and dying as a result? 'my sisters husband died ( he was part of the 2%)' Was this in reference to him having heart surgery and dying as a result? I'm very sorry for your horrible year.
  4. J

    Whats the point.....................

    I have an appointment with a health phychologist who treats people like me who show an intense grief response to these types of situations. He also suggested that a condition known as Tomophobia may be a real possibility with combined pre surgery PTSD as a reaction to the diagnosis. It does...
  5. J

    Whats the point.....................

    The surgeons comments were (and I'll will be honest) utterly against joining any online forum in relation to the operation and he did reiterate the point several times. He is involved in achademic studies about just how psychologically harming they are to certain patient groups (maybe me). But...
  6. J

    Whats the point.....................

    In the engineering job I do 2% is a massive risk and this may be where my personnal worry comes from I deal daily in numbers where 0.001 is considered unacceptable and intolerable. But without wanting to be contradictory we all know the 98% is getting you off the table. Long term the sucess is...
  7. J

    Whats the point.....................

    I have never desputed anybody elses experiences nor would I.
  8. J

    Whats the point.....................

    The points I made admittedly in my state of despair are all factual possibilities experienced by many and in part articulated as possibilities by my surgeon. There is also a reality that this is a club nobody ever wants to be in. I dread more than anything my whole life for however long it is...
  9. J

    Whats the point.....................

    A spoiled winging brat? Im a father of three facing lossing my family and life and I'm rightly scared. I have read and listened to what most of you kind people have said.
  10. J

    Whats the point.....................

    I'm asymptomatic with severe aortic stenosis (Bicuspid valve) and ascending aneurysm that needs replacing. Surgeon says 98% success (really????) and recommends a mechanical valve with dacron replacement of ascending aorta. I really struggle with the concept of walking into a hospital as I feel...
  11. J

    Honest Answers

    Hi Katherine I have thought about not having surgery but my wife rightly tells me that is not an option. Were you symptomatic before surgery and how do you feel now?
  12. J

    Honest Answers

    No health issues ever before. I think this may be the root of my anxiety. The diagnosis came completely out of the blue. I still have no symptoms but the echo and CT scan dont lie. Its all come as such a shock to our little family.
  13. J

    Honest Answers

    Pellicle I'm so terrified at the moment I cannot see any future let alone have surgery. Its really selfish with a young family and completely irrational but my brain cannot comprehend what is happening.
  14. J

    Honest Answers

    I require AVR and Ascending Aorta Replacement and I am scared senseless. Even if you do survive the surgery is all this really just palliative and you set yourself up for a life of fear and worry. Sorry to be so pessimistic but I'm 50 and in a complete state of shock and firmly believe the...
  15. J

    Confidence...if only there was a pill

    Right I really need to turn my melancholy around. I have a beautiful wife, three wonderful daughters and a great job, house etc and life had been going along just fine. My mental model is you hopfully get to your 70s and if stuff happens well so be it. Since learning I need surgery at 50 for...
  16. J

    Longevity and quality of life

    Any long term ascending aorta, root and mechanical AVR survivors on here. I have stenotic BAV and root/ascending aorta aneurysm requireing surgery. My surgeon says the composite graft and mechanical valve should be for life (I'm 50 years old). Is this a realistic expectation or just what the...
  17. J

    A slight crisis of confidence

    Its coming up to the end of 2020 and I turn 50 in January. I'm having a real crisis of confidence (not like me at all), due to needing a new aortic valve with ascending aorta and possible root I'm still not sure. Looking at my young children last night I desperately want to see them grow up :-(...
  18. J

    Worried about the future

    What is the real expected lifespan of an ascending aorta dacron graft and on-x mechanical valve (assuming no other illnesess). I'm 49 and the surgeon seems to imply for life is this a realiatic expectation? I have severe stenotic bicuspid Aortic Valve with root and ascending aorta dilation but...
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