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This is my other concern. If I go mechanical and need my aorta doing in several years time I’ll be regretting not having a tissue valve and avoiding warfarin. If I have a tissue valve and it fails before my aorta needs replacing I’ll regret that decision. Feels like quite a gamble and it could...

Good poem, Thanks 😀

Love the videos, especially the scooter it looks great fun. OK so I can see that riding a motorcycle won’t necessarily put me at significantly more risk than any other motorcyclist. Just need to convince myself that my aorta has a good chance of lasting as long as a mechanical valve. Thanks.

Sorry I’ve not been back here for a while but I’ve been in denial about all this recently and have tried not to think or talk about it because I’m terrified. However I had a meeting with the surgeon last week and he told me it will be within the next three months and I’d get two...

Thanks for the advice. I will have no problem remembering to take warfarin as I’m on medication which I put into a seven day pill box and take every morning. I’m more concerned about crashing my bike and bleeding to death, but maybe it’s not as risky as I first thought. I hope you are doing well...

Hi All, It’s been a while since I’ve posted, mainly because everything has been stable and I’ve felt good and not so anxious about my leaking aortic valve and enlarged aorta. Had my annual appointment today and was given the bad news that the valve is now classed as severe and I’m...

Why don't you try a little space cake instead so you're not clogging your arteries? However there is an argument that all weed causes anxiety so perhaps the fact that you used to smoke it has caused your anxiety and you'd be better off without. I dabbled when I was younger but these days an ice...

As you say tricuspid mechanical valve is very new, there was recently a link to it on here posted by another member, possibly Pellicle. I can't find it right now, but I seem to recall it may have advantages over other mechanical valves in that it is closer to a native valve in function and may...

It's very sad that Bill Paxton did not make it through surgery, and my thoughts are with his family. I believe complications like this are quite rare these days, but can happen and we should not take for granted how major this type of surgery is. I too am in the waiting room as are many others...

Hey Richie, how long have you been in the waiting room? And how severe was your leak? I'm just praying I have more years before the need of an OHS. I will be 29 this year and having Ah OHS early meaning it's more likely to have an re-op right? My leak was found when I was 12 and I'm 43 this...

I'm guessing you mean your Aorta and not your valve, but Aortic enlargment is usually accompanied by valve leakage or BAV when close to the valve, but your cardio will advise you best about this. At 3.8 CM which is what I assume you mean you are not considered in the danger zone. My Aorta is...

My murmur was heard when I was 14 and not long after I had an echo and various other tests to confirm I had a leaky BAV. I'm 42 now and still waiting, my cardio tells me after all these years the leak is still slight and that my aorta which is now 4.2 cm will probably be what sends me for...

I was diagnosed at 15, I'm 42 now and still waiting. My cardio tells me my BAV still functions well and that my enlarged aorta may be what forces surgery eventually, although it's not big enough yet we are watching it closely. I was initially diagnosed due to a murmur & it's leaked all my life.

Hi Malteser, I'm a UK member too but I've not heard of the treatments you mentioned, are you a private patient or are these available on the NHS. My Aorta is only 4.1 and I don't worry about it anymore my cardiologist told me when the valve or aorta is ready then both will be...

The neurologist said my CT & MRI were both clean no sign of stroke or TIA & that I was put on asprin as I was being treated for suspected TIA or stroke. The other doctors didn't quite put it like that though, they seemed to think what I suffered was so severe that asprin would be wise...

Thanks Yotphix, That sounds as scarey as what I went through, I would just put it down to complex migraine but I still feel so bad a week later I'm wondering if there is more to it. I feel like I'm drunk all the time my memory is really bad I can't concentrate and my...

Thanks Freddie, I'd love to speak to my cardiologist but as an NHS UK patient it's not that simple as I need a GP referral which can take months. I've asked my GPs opinion but he's told me to do as I'm told. He wants to look at the notes from the hospital before over ruling the neurologist but...

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Hi Pearjas, Sorry to hear about your diagnosis. 4cm is only considered slight enlargment, carry on with life & don't worry about it until you are told its time. Weight training is a bad idea with aortic enlargment, something I've had do give up myself. Cardio is a good idea as long as you don't...

Last summer I could hardly breathe for months, after several GP visits I was told to see my cardiologist as it may be time for an op on my valve. To cut a long storey short it turned out my asthma had worsened and I needed new more powerfull inhailers. I've been better since but not great , but...