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Another step forward in the research project Another step forward in the research project Good news, St. Jude Medical has agreed to support the research project. SJM will be donating valves and valve conduits of various sizes to my surgeon Dr. Cohen for testing at Cal Tech.

ALCap, thanks for your input. My valve is: St. Jude Medical 27CAVGJ-514-00. As I recall this valve conduit does have the artificial sinuses. The St. Jude site is down for maintenance right now but this should be the link attributed to my model number...

To be clear, the issue isn't about noise. I don't have a noisy valve, in fact I have a quiet valve. The valve itself can hardly be heard unlike some mechanical valves. What I have is internal pounding and vibration which can be heard as the sound of bone being struck. Duff Man, I have...

Thanks for the posts, ideas and help. My surgeon, Dr. Cohen, has told me he thinks the only surefire way of fixing it would be to replace it with a conduit containing a bioprosthesis (pig or bovine valve) or human homograft. He feels we should do everything possible to avoid that, given the...

My GP told me that some people do not tolerate Toprol due to it causing mental / emotional issues. In fact he told me that he himself is one of those folks. He was on it briefly after his bypass surgery but couldn't tolerate it and had to switch to some other medication. As to why you have been...

Tried to post the following: Warfarin is not a "blood thinner" as some people call it. Warfarin does not change the VISCOSITY of the blood. Warfarin is an anti-coagulant, meaning it inhibits coagulation... it slows the rate at which blood clots. It is commonly used to treat patients with...

Thanks Lyn, yes, please share my information. I'm interested in hearing what your surgeon friend thinks and I'd be happy to answer any questions.

From Reunions Thread From Reunions Thread This is from Mike (Racefan)

From Reunions Forum From Reunions Forum Lyn, here's what Debbie posted on the Reunions thread:

Lyn, yes I collected all of my medical records that I could get my hands on and was starting to research who would be good to see for a 3rd opinion but I got laid off from my job. That has been very stressful and I have not pursued the 3rd opinion. Since then I have divided my time between...

Hi Mary, I will see if they will post their thoughts and reactions on this thread, I'd rather they speak for themselves. But I thought they seemed surprised by the severity of the pounding-vibration, and Mike (Resqrn) who was a cardiac nurse said he'd never seen such a condition before.

I've been experiencing episodes of chest pain and weakness. I talked with my cardiologist, Dr. Roth on the phone and said he doesn't think I need any more echos, cardio caths or other tests and recommended I go to a Pain Management Specialist (PMS). He doesn't want to get involved prescribing...

It was great getting together with Mike (Racefan), Debbie and Mike (Resqrn). All three had some traveling to do to get here and make it happen – thanks you guys, and thank you Mike for posting our picture! I really appreciate our time together, and my wife enjoyed our meeting too. There is a...

Have you had aortic valve and/or ascending aorta replacement and also experienced a pounding sensation with physical vibration related to the beating of your heart? If so please take my survey at the following link. I'm documenting this condition and presenting the results to my surgeon...

Survey Survey If you have had aortic valve and/or ascending aorta replacement and also have experienced a pounding sensation with physical vibration related to the beating of your heart, please take the survey at the following link. http://tinyurl.com/cmj3c6 Thank you Keywords: heart...

Bina, I now better understand your "May have been in contact with..." caution. ;-)

3-29-09 Update 3-29-09 Update The guy who was my first contact with St. Jude Medical (the manufacturer of my valve/conduit) referred me up the food chain to Dr. Frater, the Medical Director of the Surgical Division of St. Jude. He is a retired cardiac surgeon. Dr. Frater and my surgeon (Dr...

Pounding-Vibration Pounding-Vibration Shawn it's my understanding that you are not referring to sound, noise, ticking or how loud the valve is, but rather your heart beating against your sternum, collar bones and neck. It's incredible the surgeries you have had, after going through all that...

Since my Bentall surgery in June 2008 I've had a vibration issue related to my valve/conduit prothesis. I've been told this is very rare but I've encountered other's on this forum with vibration issues. I'm documenting other people with the same condition and presenting the results to my...

After my surgery, when I was still in the hospital, around 3a.m. one morning a nurse urgently woke me up asking if I was OK. She seemed stressed, I asked what was wrong and she told me my pulse rate was at 30. She sort of frightened me, it made me wonder if they were concerned I was going to die...