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  1. Gail in Ca

    TIAs with aortic valve replacem

    I went into a-fib 3 yrs after my 3rd surgery. I heard and felt my heart beating irregularly, rarely fast. I had a cardio version and enjoyed normal rhythm for 2 yrs. Then, back to irregular beats which another cardio version didn’t change. I’ve been in chronic a-fib since 2014.
  2. Gail in Ca

    The next stage of Cardiology?

    I ended up with a very caring therapist that was provided for free to caregivers of people in hospice. My Mom was 99 and finally qualified for hospice, not that she would pass soon but they reevaluated every 6 mos. This gave her covered items for her care that she was paying out of pocket for...
  3. Gail in Ca

    The next stage of Cardiology?

    This would be laughable if it wasn’t happening now. I think doctors are somehow encouraged to go to the psychiatric side of medicine no matter the symptoms and it’s unsettling. My daughter was feeling so sick and her friend who was finishing up at ucla medical school told her to see a...
  4. Gail in Ca

    Feeling a whirlwind of emotions—sadness, confusion, bewilderment, …, etc. after my recent “Bubble echo” test, which uncovered a hole in my heart.

    I’m sorry you are going through this. I don’t have any experience in this, but it brought to mind my childhood friend who, at 13, had open heart surgery to repair a hole in her heart. It was in 1967 and Dr Shumway did her surgery at Stanford. I remember visiting her and she had walked all over...
  5. Gail in Ca

    4th procedure

    I have gotten the CT results/summary. It mentions porcelain ascending aorta, severe atherosclerosis of descending aorta, among other things which are not good. It’s been a week and I haven’t heard from any of my Doctors about this test. It was ordered to tell the cardiologist if I’m a candidate...
  6. Gail in Ca

    Possible 3rd Valve Replacement

    Yes, my questions and concerns are the same. I just had the CT w contrast a couple of days ago of the chest, abdomen and pelvis. Haven’t gotten the results, yet. I’ll probably end up getting another opinion or two. It’s just a hard thing to do when I’m an introvert!
  7. Gail in Ca

    Possible 3rd Valve Replacement

    I’ve thought of seeing Dr Starnes or driving back to see the Stanford doctor my cardiologist said he would send me to if I still lived there and needed another surgery. However, why should I not take a well respected surgeon’s advice about not having a 4th surgery? Dr Trento has done every...
  8. Gail in Ca

    Possible 3rd Valve Replacement

    Surgeon said I was very high risk for something to go wrong during a 4th surgery, like a stroke. He just said if he were me he would do the TMVR off label and hope to get 10 years from the valve. I’m not a candidate for mitraclip because my mitral valve area is very tight from being repaired in...
  9. Gail in Ca

    Possible 3rd Valve Replacement

    I, like most open heart redo patients, expected to be able to have a 4th surgery if my mitral repair from the 3rd failed. I’ve recently had the bad news from the top surgeon at the #2 heart hospital that I’m too high risk for a 4th surgery and my only possible option is TMVR off label and ‘hope’...
  10. Gail in Ca

    New member - choosing a valve

    May you have a peaceful wake up from surgery and a great recovery!
  11. Gail in Ca

    Possible 3rd Valve Replacement

    A few members have had 3 surgeries, but when I started a 4th surgery thread, no one responded that had 4.
  12. Gail in Ca

    Possible 3rd Valve Replacement

    My surgeon said it took 3 hours to cut through the scar tissue from my previous surgeries. I did fine, though. I looked into 2nd opinions recently and they’re not cheap and not covered by insurance. This is if I didn’t actually meet the surgeon at an in person appointment, but just go through...
  13. Gail in Ca

    Possible 3rd Valve Replacement

    Since I’ve had 3 surgeries I’d have to say each one is different, and the complications and recovery is also different. The top Stanford surgeon (now retired) did my 2nd, 3rd. He’s such a confident surgeon I just knew I’d be okay. I think I was in worse shape going into my 2nd with CHF but I...
  14. Gail in Ca

    Howdy everyone! Just found this site.

    When I did self dosing, I found that the supplies cost more through using my insurance, so I bought strips where they were the best price, usually eBay. I already had the meter. After my endocarditis and brain bleed my cardiologist and surgeon wanted me to deal with the Coumadin clinic where I...
  15. Gail in Ca

    Howdy everyone! Just found this site.

    I get my INR testing supplies from Acelis Connected Health. They also have meters and take my insurance. I would think you wouldn’t have pain at this point and should feel pretty good. But I got my first valve and Dacron graft at 34 so I bounced back well. My ascending aorta waited to fall...
  16. Gail in Ca

    Endurance cyclist much worse after robotic mitral valve repair

    I’m sorry to read about how you feel after mitral repair. I had mine repaired when I was 54 and it was at mod to severe. I thought it would be the last time I needed heart surgery. I felt great after recovering, and could really tell the difference on my activity level with a mitral that didn’t...
  17. Gail in Ca

    Anyone had 3 valve replacement surgeries?

    I had my wires removed after the 2nd and 3rd surgeries, within a year of the surgeries because they protruded and bugged me, and my surgeon was fine with my removal request.
  18. Gail in Ca

    Anyone had 3 valve replacement surgeries?

    You are approaching your 3rd surgery with a great attitude! It puts the positive vibes out into the universe. I awoke from #3 feeling so good. I did spend an extra day in ICU, so I guess the partial collapsed lung caused that. I know I was mostly ignored in that section of ICU, so I think it...
  19. Gail in Ca

    4th procedure

    It took 3 weeks to finally speak to someone in the cardiologists office about the CT or other tests he would want. I called 3 times this past week to schedule the CT, but just could not wait on the phone more than 15 minutes. I’ll try again next week. All I know is if this was Stanford, I’d have...
  20. Gail in Ca

    Endocarditis Quiz

    I lost valuable time when the ER doctor said I had the flu and rotator cuff pain. Misdiagnosis was the major issue for my case. Two days later, the urgent care doctor that saw me ordered many tests, including blood cultures. That night I saw blood in my urine. My INR was 6. The doctor on call...
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