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You're welcome. If you'd like, I can show you the links to the studies that reveal what I said about AVR after 65. As as for atrial enlargement, probably most people here know a lot more about it than I do, so I'd listen to them more than me. :^)

Docs are never concerned, not really. They aren't the ones who are sick, and they know that so long as they follow the AHA guidelines, they won't get sued. It is my understanding that atrial enlargement is part and parcel to aortic valve stenosis, and that it often (if not always) reverses at...

You can hope that you don't need the surgery for a long time, but lying to yourself (and others) about it is a very bad idea. People believe a lot of things to make themselves feel better, but at the end of the day there is such a thing as reality, and a dangerously stenotic valve doesn't care...

I can appreciate being worried sick. Do you know WHY you would not qualify for regular OHS? Surely there must be some known complication that you have?

1 in 5 people have Lp(a) that is high enough to increase their odds of getting heart disease. That's not exactly a rare condition. (Sure, to the degree that *I* have elevated Lp(a), it's hella rare... But to the degree that it might benefit people to let them know they have an inherently...

www.lipid.org/sites/default/files/12-moriarty.pdf What I am seeing here makes it seem criminal that we are not offering apheresis treatments to people with heart disease and extremely high Lp(a) in the USA. Read about a reduction in event rates of between 80-90% after initiating apheresis...

AZ Don, whether or not it is treatable depends on who you talk to. As it stands it looks like I am going to have to go through telemedicine in order to get a doc who will treat it, and in any event my levels are so cartoonishly high that there is no way we'll get them to normal levels with any...

No? But it is TREATED, at least at my level. I am three times the level where apheresis treatment would be administered if I lived in the UK (or Germany), provided there is evidence of coronary disease (which there is, on two counts). But here in the states, our plan is to shrug and tell the...

Probably, yes. He claimed that it wouldn't be able to lower a level like mine down out of the "extremely high risk" zone, but that lowering Lp(a) by even 30% could have a significant effect on inflammation -- he was big on the use of inflammation panels. Here in the states, at least, this kind...

The Lp(a) IS a factor, as is the bad allele I am homozygous for. But no one here knew about that, and local doctors don't seem to know about it either. I *knew* there was something off about a 42 year old guy developing CAVS with a normal valve. My worry was that it was due to my bad...

WHY NOT?!? Why WAIT for someone to develop heart disease to warn them that they're much more likely to develop heart disease due to a genetic factor? Why wait until it's too late?!? That test costs $30, and 1 in 5 people has elevated Lp(a) -- not to the degree *I* do, but elevated. That...

You know what it is? I feel -- for lack of a better word -- alone. You're right, Paleo -- the vast majority of people here are bicuspid valvers, and their experience and advice is keyed to that. I can go to an Lp(a) forum and the people there are nice, but none of them are dealing with AVS...

Paleowoman, I'm talking specifically about the connection between high Lp(a) and CAVS. This is an AVR forum, so you'd think the people here would have known about it, even though most got here due to BAV. Why isn't it standard policy to test the Lp(a) of people with AVS? Why isn't it policy...

I meant you guys, too. I don't recall you ever suggesting, way back when I first came here confused about how I got this at my age with no BAV, that I might want to have my Lp(a) checked because crazy high Lp(a) could be the missing piece of the puzzle. But yes, American doctors seem pretty...

I really did not remember you mentioning anything about the connection. Months ago, when I first came here? I remember being freaked out that I was so young to be having CAVS, and with an apparently normal valve. I don't recall ANYONE recommending that I get my Lp(a) checked, or suggesting...

http://www.lipoproteinafoundation.org/news/347368/Link-between-Lpa-and-Aortic-Valve-Disease.htm "Recently published research has shown that elevated Lp(a) is the strongest independent genetic risk factor for heart valve disease and individuals with high Lp(a) may also be susceptible to earlier...

No, cldhd, it's an experimental drug and the doc was not sure if their subject criteria included having had a heart attack or not, or if my high CAC score would enable to to qualify despite not having had a heart attack. I think they are looking for test subjects with high Lp(a) and known...

We know what the Muppets are, of course, but the use of the word to mean "a stupid person" is not widely known here.

Remember -- here in the USA, spending the $150 required to identify someone with high Lp(a) is NOT WORTH IT. "Those people" and their long-term health just aren't worth $150. Besides, if enough of them realized they had a problem, they'd start demanding treatment -- and we can't have THAT...

What the godless people in your country do not understand, Agian, and what Americans understand COMPLETELY, is the Power of Prayer. Treatments are, in fact, a swat to the face of the LORD. God is Great, God is Good, and God is what makes 'Murrica STRONG! You can KEEP your fancy egghead...