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  1. Nocturne

    Lp(a) of 390 nmol/L!

    The term "muppets" you are using is not in popular usage here in the USA, at least not outside of banking circles. I'm not entirely sure of the meaning you are trying to convey myself, although I get the gist of it.
  2. Nocturne

    Lp(a) of 390 nmol/L!

    So, finally met with my lipid doc again. I was a bit disappointed that she clearly had not read any of the emails I had sent her as it was clearly news to her that high Lp(a) is associated with calcific aortic valve stenosis and appears to accelerate progression. And she was not even aware...
  3. Nocturne

    How I decided NOT to skip pre-dental Amoxycillin to save my intestinal flora.

    Should people who have AVS but not yet had AVR also be taking antibiotics before cleanings? I ask because no doc I have been to has mentioned this yet.
  4. Nocturne

    Just got the news: BAV (Age 40)

    That's pretty amazing. Congratulations. I can only imagine the immense relief you must be feeling right now. Edit: Not to scare you or anything, but did they check your lipoprotein a? Lp(a)? Because it seems like you have some weirdness regarding your valve back there, and sky-high Lp(a)...
  5. Nocturne

    Isn't that FUNNY?

    That's my thought as well. Of course it will take a decade or so to hash out exactly how it works to the point where the insurance companies can no longer have plausible deniability, and by that point it'll be too late for me. But I'll get to tell me doc "I told ya so", which I guess is worth...
  6. Nocturne

    Isn't that FUNNY?

    Not everyone who carries the rs104-and-change G variant allele develops CAVS, but they do have about triple the normal chance of doing so, or quintuple the normal chance if they happen to be lucky enough to be homozygous. I can see the concern, but honestly what would be served by NOT telling...
  7. Nocturne

    Isn't that FUNNY?

    Not everyone who carries the rs104-and-change G variant allele develops CAVS, but they do have about triple the normal chance of doing so, or quintuple the normal chance if they happen to be lucky enough to be homozygous. I can see the concern, but honestly what would be served by NOT telling...
  8. Nocturne

    17 Year Old - Will this change my life?

    Holy Crap, Agian -- you *SMOKED*?!? I shudder to think where I'd be now if *I* had ever touched a cigarette...
  9. Nocturne

    17 Year Old - Will this change my life?

    One more thing -- I'll repeat what I said before -- get your Lp(a) levels checked! You will have to ask specifically for them to be checked, because your doc will not do it on their own unless they are really on the ball -- the connection between AVS and Lp(a) has only been known for a few...
  10. Nocturne

    17 Year Old - Will this change my life?

    I have a son his age, too...
  11. Nocturne

    17 Year Old - Will this change my life?

    ****, I didn't realize you had had a birthday. Happy belated birthday!
  12. Nocturne

    17 Year Old - Will this change my life?

    It sounds like you have BAV but not aortic stenosis -- yet. Not good, but not terrible. As I understand it, about half of people with BAV never develop aortic stenosis. Obviously, you need to keep yourself healthy. Sounds like you are doing that. If I were you, I would get my Lp(a) tested, as...
  13. Nocturne

    Isn't that FUNNY?

    I'm the OP. Just frustrating to be looking at potential treatments through a thick glass, unable to actually reach them. Seems like we're RIGHT on the cusp of being able to do some serious good for people like myself -- but aw, not QUITE soon enough. I think what they are trying to do is...
  14. Nocturne

    NEJM presentation on AVS

    Very interesting presentation on AVS from the NEJM in 2013: http://asecho.org/wordpress/wp-content/uploads/2016/10/P.-Pibarot-Update-on-the-Pathophysiology-of-Aortic-Stenosis-1.pdf Some of this will be old hat to the old timers here, but look at the more current stuff regarding the involvement...
  15. Nocturne

    Could antisense therapy SLOW progression of CAVS?

    http://www.jlr.org/content/early/2015/12/18/jlr.R051870.full.pdf "In summary, the recent identification of genetic variants in LPA as being strongly associated with calcific aortic valve disease, and the Mendelian randomization studies demonstrating that this genetic association is mediated by...
  16. Nocturne

    CAC score progression

    I've recently been doing some more reading and figuring on CAC scores, and I've come to the conclusion that there may be a bit of wowsering and fear-mongering coming from some circles. I'm not saying that the CAC score is an invalid measure of CHD risk or anything -- far from it! But a couple...
  17. Nocturne

    Say it isn't so .. Hello friends !

    Harriet, I don't know you, but I am concerned for you. Sometimes, a person just does not know what to say, and this is one of those times. What is happening to you is not fair, and not right. I hope something wonderful happens.
  18. Nocturne

    Getting a Pacemaker

    Mark, I don't know you but I wish you the best. 17 years! Way to go! I'm ignorant about pacemakers, and curious. I get that they set your RHR, but what happens when you exert yourself? Do you have to reset the pacemaker to a higher rate before you swim? That doesn't seem very convenient...
  19. Nocturne

    Lp(a) of 390 nmol/L!

    Interesting JACC article about Lp(a) that mentions its role in AVS: http://www.sciencedirect.com/science...35109716372540 * * * * * What is the clinical evidence that Lp(a) mediates CAVS? Although it has long been suspected that Lp(a) is a risk factor for CAVS; only recently has Lp(a)...
  20. Nocturne

    The Future of Valve Choice?

    Thanks -- I actually noticed that after I posted this, and looked but could not find a post that would have gotten him banned. I assume it was erased, whatever it was.
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