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  1. P

    Not bicuspid?!?

    I don’t understand some of the technical terms in the link you sent. But I’m trying!
  2. P

    Not bicuspid?!?

    I guess compared to what everyone says the age of typical valve failure. This is all so interesting to me. I do wish there was a concrete answer.
  3. P

    Not bicuspid?!?

    I’m glad it hadn’t progressed to anything worse. My heart was in a great shape with no CAD. My biggest symptom at the time was extreme hypertension when standing and palpitations. I had other symptoms previously but this was what started the whole ordeal of a 911 call, etc. i believe I had...
  4. P

    Not bicuspid?!?

    Very much so!! I couldn’t find very much googling. It seems it was a rare occurrence for me. Especially being so young.
  5. P

    Finaly its going to happen friday the 23st

    Praying you recover well and now will be just a time to recover. Please do keep us updated.
  6. P

    Not bicuspid?!?

    I did not have stenosis.
  7. P

    Not bicuspid?!?

    Would these cause regurgitation/aortic insufficiency. I did not have Stenosis. Would it be a gradual change and take 25 years to begin to fail?
  8. P

    Not bicuspid?!?

    Very interesting. Thinking back I took phentermine for a very short time in the 2000’s I believe but it didn’t do anything so I stopped. I never took anything with phen phen. I specifically remember people getting really sick and having crazy side effects and it wasn’t worth it to me. The...
  9. P

    Not bicuspid?!?

    Interesting. I have never been a drug user. Tried pot a couple of times but never anything harder than that. I don’t even drink that much. I’d love to read anything else you find. I’ve tried googling, but I don’t think I know what I’m looking for.
  10. P

    After surgery…

    I just thought this was interesting and y’all would understand. I had surgery 12/22, just found out about issues in November. So, I definitely feel better. It’s so weird how I feel like my body is working more efficiently now. Even though I’m still healing, I have more energy (if that makes...
  11. P

    Not bicuspid?!?

    I was asked this several times, but nope. I never had rheumatic fever. At least as far back as I can recall.
  12. P

    Not bicuspid?!?

    I could be wrong but I don’t think I had stenosis. Just severe AI with moderate to severe regurgitation.
  13. P

    Not bicuspid?!?

    This is what the pathology report stated FINAL DIAGNOSIS: Aortic valve leaflets, valve replacement: • Three valve leaflets with myxoid change. • No inflammation or calcifications identified.
  14. P

    Not bicuspid?!?

    What is LP(a)? I am not pre-diabetes. Im would like to know what contributed to this so I could make sure no other health issues arise or at least be aware of what could.
  15. P

    Not bicuspid?!?

    I chose the St. Jude
  16. P

    Not bicuspid?!?

    I already had it replaced and it was tricuspid with no calcification. His notes said he couldn’t discern what caused the severe AI and regurgitation. 🙃 I’m so young for valve disease, I thought for sure it was a congenital defect. Who knows?!?
  17. P

    Not bicuspid?!?

    So I had 2 echos done before surgery. I did have different statements. one said tricuspid, one said bicuspid valve. I had a ct, and an angiogram done as well. Anyways, I was told my valve was bicuspid. But it turns out it wasn’t. I just read the report and the surgeon notes he can’t discern...
  18. P

    Tell me your rxperiences

    First, thanks for making me laugh! 😂 I go from chair to chair but last night I actually was able to sleep in my bed with a bunch of pillows and slept for maybe 4 hours total! It felt like a victory!! I feel like the pain comes and goes. My problem is when it feels a bit better I start to do a...
  19. P

    Not a fun Christmas

    Oh my goodness! Glad you’re doing better. Stay strong!
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