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You can reply to anything I write! I definitely see you’re well versed and respected around these parts so I’m glad for whatever input. I really do think I need to stop googling. It’s driving me insane lol. Surgery is certainly the case of when and once I subscribe to that narrative I’m sure...

The false hope is what’s killing me I think. In April 2022 it was “you’ll probably never need it”. Safe to say I’m like ????????? Lol. I’m anxiously awaiting the grateful part. I know I’ll get there but for now I’m definitely anxious and scared and in shock. All the things. I’m glad this isn’t...

Thank you soooo much for this well thought out and probably time consuming reply. I’m going to read again everything said here and will reply with a better and though out response than this, just want to acknowledge and thank you.

I can’t believe you were in the waiting room for almost 20 years. That’s both probably a lot of dread but also ideal… mine seems to be dilating at a quicker pace which sucks. I hope it slows down. I’m absolutely replacing my cardiologist, who is a PA btw. I’m absolutely trying to get in with...

Thanks for this reply! I spent the weekend mourning my past life lol. I’m ready to respond and be active here and learn from you all! I have read about a lot of options and procedures. So much to think about. Have you hard of a valve sparing procure? That looked interesting, as I’m sure everyone...

Thanks so much. I hope so. If not, I’m trying to prepare. Does anyone have thoughts on how hard it is to actually get an appointment with a top surgeon in my area? Is it impossible? Do I need to be a celebrity? Like what’s the deal? There’s great surgeons I’ve researched but I assume they’re...

This is such a thoughtful reply. I appreciate you! I’m glad you’re well now :) and yes., that’s my first thing I need to do!

This is a great recap on how I’m feeling. I have yet to take to my thoracic surgeon but of course I’m thinking maybe I won’t! Which isn’t reality. It’s just alot to disgest. I’m scared.

Hi Deidra, I can’t thank you enough for your I will respond more later, but just know you are great. Thank you.

So if you saw my first post yesterday you’d of seen I was going to get repeat scans after first getting diagnosed with BAV in April 2022.. My ascending aorta was 3.6cm then.. Today, it was 4.2 x 4.1 cm and with that I was referred to a thoracic surgeon. I am quite literally out of my mind...

Hi all, happy to find somewhere to vent/get some information about likely the rest of my life lol I’m a 34/F nurse from New Jersey and last year I was diagnosed with BAV. Here are some excerpts from my imaging: “The heart is normal in size. The ascending aorta is top normal in caliber and...