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  1. S

    Question about genetic testing!

    Every doctor my I have ever had has noticed his. LOL But I also suffered high blood pressure so maybe that's why? Or it could be heart placement, since my heart is displaced. According to my wife she can hear/feel my heart louder/stronger than anyone who's chest she has put her head ons...
  2. S

    Another one for the stats....

    You voted on whether to have the surgery or not? That isn't something anyone but me has a say in, and my doctor of course. Sorry, I wasn't trying to be a butt, I was honestly a bit confused...
  3. S

    Question about genetic testing!

    Wow! That is a pretty big aneurysm. I am glad you found the right doctor. How scary!
  4. S

    Question about genetic testing!

    My doctors have all heard my murmur. I would tell each new doctor I'd had it all my life, and no one checked it out further. I had no symptoms, so they assumed it was an innocent murmur. I went for my physical to renew my med certificate for my commercial driver's license and they said I...
  5. S

    Question about genetic testing!

    That is interesting. Did the RA cause a genetic mutation? My mother had multiple sclerosis, and I carry a bunch of genes linked to MS, but haven't found any linked to BAV. I believe my Pectus Excavatum (PEX) is genetic as I have a cousin who also has it. BAV is associated with PEX, but I don't...
  6. S

    Surgery is officially recommended

    YES! In the early days the doctors were told it wasn't though. Even a lot of the doctors who were skeptical ended up believing the pharmacy reps lies. My ex-husband was prescribed it after shattering his wrist and shoulder blade because he had to wait a couple of days for surgery and was in a...
  7. S

    Angiogram done!

    My arteries got a clean bill of health, so at least I have that going for me. I was quite unhappy being stuck in the hospital bed not being allowed to go home and I can tell I am going to have a hard time after surgery. I had to sit there with my elbow on the table and my hand in the air for...
  8. S

    Question about genetic testing!

    Isn't BAV bicuspid aortic valve? Is BAV different than having a bicuspid valve? Sorry, pretty new to this...
  9. S

    Surgery is officially recommended

    I am 50, oh wait, 51. It was my birthday the day he said I needed surgery. The surgeon who said he would recommend it isn't my surgeon, just a friend. My Cardiologist was the one who said tissue valve was the way to go. I haven't talked to the surgeon yet. I am getting my angiogram tomorrow.
  10. S

    Surgery is officially recommended

    No, I was talking about how doctors were paid for prescribing oxycontin.
  11. S

    Question about genetic testing!

    I think because they were assuming it was something to do with the heart position and not an actual issue. The murmur did change in it's sound and that is when a doctor first expressed some concern. So maybe there are normal murmurs and concerning murmurs? HAHA This is what google AI said...
  12. S

    Is numbness of the feet a sign things are getting worse?

    I just can't believe that a trauma nurse had never seen someone deal with stress by laughing inappropriately. My wife is very non-confrontational. She just took it and vented about it later. Wait, she still vents about it and it was over 15 years ago. LOL
  13. S

    Another one for the stats....

    What did you vote on? You do know that your vote is the only one that matters right?
  14. S

    Question about genetic testing!

    You can take many genetic tests on the market, including ancestry, 23 and me, myheritage and the like, and for $12 run them through Promethease. They will give you a searchable report. You can search by condition or individual gene. Since I had previously done ancestry I uploaded my data and...
  15. S

    Question about genetic testing!

    HA! I have had a murmur all my life, no one ever mentioned BAV. They said a lot of people have murmurs, it is normal, don't worry about it. *smh* It was thought to be due to heart positioning from my Pectus Excavatum. I ran my ancestry DNA results through Promethease and have zero of the known...
  16. S

    Is numbness of the feet a sign things are getting worse?

    When my wife's son was getting emergency surgery she was cracking jokes and the nurse took her aside and basically told her that he had a good chance of dying and she needed to be acting appropriately. I wasn't there or I would have told her off. She handles stress with humor and people think it...
  17. S

    Is numbness of the feet a sign things are getting worse?

    I know. Them removing the wrong organ is definitely not one of my fears. Not being able to do what I normally do and trusting my wife to handle stuff is. LOL
  18. S

    Is numbness of the feet a sign things are getting worse?

    Really not good stuff to post right before I get surgery. HAHAHA
  19. S

    Surgery is officially recommended

    Thank you for sharing your experience.
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