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    🎉 EXCITING NEWS!! - Orangebrittainy 🎉

    Huge congratulations and what a wonderful start to what I hope is a very Happy New Year to you and all your family.
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    Date set

    Go Girls.! What a way to start the New Year. Will be waiting to hear from you after the big day as long as the Isle of Man has not been blown away.!!! Adrienne xxx:cool:
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    Hello all...

    Best wishes for a speedy recovery. Adrienne:cool:
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    Fear

    Hi Anne, When I thought I would need a 2nd OHS sooner rather than later earlier this year my initial thoughts were I don' think I can do that again! Then i thought about it more rationally, and realised yes I could. Yes you have to be focused, Yes you have to be brave Yes you need to do what the...
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    Surgeon or Cardiologist?

    Hi, I have already had my bicuspid valve replaced 15 years ago and my aortic root is 4.9 cms and has been for a few years. In February my cardiologist was all for surgery but when the MRI showed it was static he backed right off. Like you I was in a real quandary but if you look at the article I...
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    English press

    Have not visited for some time but I wondered if anyone had posted this article which looks really promising for the future. Engineer saves his own life and 40 others by inventing device to repair life-threatening heart defect Tal Golesworthy has Marfan syndrome - a disorder of the body's...
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    Renal colic

    Just home from hospital after passing a renal stone. Give me OHS any day of the week.:mad2:
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    Do I just go on waiting?

    Thanks for your thoughts guys. NHS can be very good but never really a partnership with Doctors because in the end they call the shots.
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    Do I just go on waiting?

    I just wondered what anyone's thoughts were on this matter. I had a cardio appt in February and was told my aortic root had gone from4.7cms to 4.9cms and I would be refered to the surgeon who replaced my aortic valve once an MRI scan confirmed the measurement. The MRI scan showed the aortic...
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    post surgical complications and feelings (some may find images disturbing)

    Oh Pellicle cannot believe your latest news! No way does this seem to be a wimpy infection rather a low grade bug that has got well and truly entrenched and lulls everyone into a false sense of security only to make a re-appearance. Can only send you best wishes and encouragement to keep your...
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    Clumsydancer Post Op

    Well done clumsydancer, Wishing you a smooth and speedy recovery. Interesting about the hole in the leaflet- not heard of that one before. Anyway best wishes. Adrienne :cool:
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    First time poster, had surgery March 28th, 2013

    Hi Kevin, Really pleased to hear that your surgery and early recovery has been going so well. Keep up the walking but also remember your body needs to rest as well. As they say moderation in everything! :cool:
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    Smokers

    I smoked from the age of 18 and even after surgery I continue although I was a health professional! 9 years agoI finally stopped(having stopped for 2 years and then started again) using a site called Quitnet.com It is American and was started by Boston University Public Health. It is a support...
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    AVR With Sorin Top Hat - 5 April 2013

    Hi, I had a Sorin Fitline fitted about 11 years ago. In the UK we do not have a choice in the type of valve used but I believe it is a European model. It has always been fine since day one. Very loud at first but I do not hear it at all now. At the most recent check it is A1. I shall be upset...
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    Connective Tissue Disorder

    Having been seen by a geneticist in London who was involved in discovering the Marfan Gene I was told that I had Hypermobility Syndrome. This can cause lax joints, varicose veins, "double joints" in fingers and toes and being prone to hernias. Again this syndrome is on a continuum and problems...
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    this is the freaking craziest disease ever!

    If the valves are leaking to that extent it can only mean the heart is having to compensate which over time=damage. If you have surgery now your heart will remain strong and possibly ten years down the road if you need future surgery the techniques used will probably almost be to Day case...
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    Wasn't expecting to be back here!

    Nothing ever as comfortable as your own bed. Hope your recovery is now as smooth and straight forward as possible because hey how much excitement does a girl need. Very best wishes to you and your family at this new beginning, coinciding with Easter. There must be a message there. Adrienne:cool:
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    post surgical complications and feelings (some may find images disturbing)

    Hi Pellicle, Really hoping that no new is good news. Keep us up to date. Adrienne:cool:
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    Baby Aspirin

    All the best for Tuesday. Sure you will be home before you have chance to think what it was all about. I know I found the whole thing surreal. See you in post-op! Adrienne:cool:
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    post surgery update

    Excellent news. Sorry to hear about the paralytic ileus, I think I would rather have OHS than an NG tube. Remember to pace yourself and not over do things just because you are feeling so great, but you have your own nurse so she will keep you on the right path!! Adrienne:cool:
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