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  1. M

    Hello Fellow BAV Repair Peeps

    Hi, Lucker. I just read back at a few of your posts… looks like you have been in the waiting room a long time. Best of luck to you on your journey. I wonder if you have a source for that? I am not asking to call you out in any way – I am genuinely curious. I wonder about things like the...
  2. M

    Hello Fellow BAV Repair Peeps

    Thanks, Lucker, happy to have it behind me. I had all the symptoms listed here except chest pain. All resolved after surgery. https://my.clevelandclinic.org/health/diseases/24396-aortic-regurgitation#symptoms-and-causes May I ask your interest in asking?
  3. M

    Hello Fellow BAV Repair Peeps

    Hi, Survived03. I am not sure what I said that indicates that I am not in fact living my life and moving on. In fact, I said the opposite! I haven't been online much, and thought I should return out of gratitude for the pointers to research papers I had not found on my own (and a few other...
  4. M

    Henrik Lundquist (NHL star goalkeeper) story; Aortic valve, root and ascending aorta surgery

    I really appreciated that Henrik Lundqvist documentary. He also had Eric Roselli from the Cleveland Clinic on his podcast: He seems like he went through it – cardioversion after surgery, pericarditis. I also read he has a deal with some pharmaceutical company to raise awareness of recurrent...
  5. M

    Hello Fellow BAV Repair Peeps

    Hi. I appreciate people responding to me when I first came here. I did take time and read a bunch of papers, but didn't have time to make my way back here. I didn't see that many people with bicuspid aortic valve repairs on this forum — maybe I didn't look hard enough, though. Before surgery, I...
  6. M

    New member - choosing a valve

    Wow, that’s nuts. I hope you will feel better than ever with your new valve, once you are fully recovered.
  7. M

    Hello Fellow BAV Repair Peeps

    Thanks for the pointer, @sam. They also lump calcification with fibrosis, the latter term being one I am not familiar with in this context.
  8. M

    26M 5.1cm Aortic Root Aneurysm + Bicuspid Valve Surgery

    thanks for the clarification! cheers to life!!
  9. M

    Hello Fellow BAV Repair Peeps

    thank you! i am very grateful for you sharing your experience! i hope so!!
  10. M

    26M 5.1cm Aortic Root Aneurysm + Bicuspid Valve Surgery

    @Survived03, thank you so much for sharing your experience. It is helpful for me to have someone’s real life experience vs probabilities and statistics. I have a question about calcification / stenosis of your repaired valve — the stenosis occured even with little calcification? Do you know the...
  11. M

    Hello Fellow BAV Repair Peeps

    Thank you Tom. So far so good and I am optimistic about the future :)
  12. M

    26M 5.1cm Aortic Root Aneurysm + Bicuspid Valve Surgery

    Last year, at age 55, I had BAV repair (type 1) + annulus stabilization + aortic replacement. I am still learning about it. From what I have read / heard, the benefits of repair are - likely longer freedom of reoperation compared to bioprosthetic - better quality of life (no drugs /...
  13. M

    Hello Fellow BAV Repair Peeps

    Thanks. I am just trying to learn why repairs fail eventually. It’s good to know that yours lasted so long.
  14. M

    Hello Fellow BAV Repair Peeps

    Thank you for the welcome! May I ask the reason was for your valve’s failure?
  15. M

    Hello Fellow BAV Repair Peeps

    I just learned of this community. Hello! I am 56F. Around this time last year, I learned I had a moderately leaky bicuspid aortic valve and a less moderate aortic aneurysm. My leaflets were in good shape — no calcification. My surgeon repaired my valve, stabilized my annulus, and replaced the...
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