I eventually ended up going back to the hospital to see if there was anything else I could do. My pharmacist friend recommended I try steroids and I asked them about that. I've been on Prednisone for a few days now and its been working wonders no more pain in my shoulders or lungs. Hopefully it's just inflammation and will go away after a bit.
I hadn't ever heard of this, but I can see why:
I'm currently on colchicine and Prednisone. I had small pleural effusions and a medium sized pericardial effusion. They seem to be going down in the last few weeks though. The Prednisone definitely works but I do hope it's not recurrent. I do think there's a good chance I gave myself the inflammation. Once I was given the clear to start working again I worked pretty hard for a few days and then I went on vacation to Europe and walked 8ish miles everyday which mjnd you was only about 2ish months after the surgery. I'm 27 and my cardiologist said I was good to go but. Im hoping I just over did it all.
I should only be on it for 2 more weeks. I've used it in the pass for allergic reactions and haven't had any adverse affects.
I have/had a few different autoimmune issues so am prone to others.
I've been on the colchicine for about 3 weeks now. And the Prednisone for a week my pain is completely gone or atleast barely there at times. I did have the symptoms for about 3 weeks prior. The doctors thought I had a viral infection or something and I was only on ibuprofen. I'm also on warfarin but my cardiologist said that as long as I'm not prone to intestinal bleeding that it's okay to take. I do really hope it's not recurrent. I start tapering my Prednisone in a few days so we shall see how it goes.
I do wish the doctors would have warned me about the Prednisone because I probably would have opted to stay with just the colchicine
throughout history doctors are clearly demonstrating they don't necessarily know really know much than a well informed patient on a particular topic. Sometimes the information takes a while to get out there and "fully saturate the network". Sometimes I believe its the patients who bring it to the Dr's attention first.
Makes me wonder if this was related to my recurrences, but then again, as mentioned earlier, I'm prone to autoimmune issues so hard to say. Colchicine wasn't even on the market yet in 1998, so Vioxx was my miracle drug that got me off Prednisone, even though it was later removed from the market.
You linked to an article about thalidomide. A drug that caused birth defects in many countries, but not in the USA due to the brave actions of Francis Kelsey: https://www.fda.gov/about-fda/fda-h...eviewer-famous-averting-public-health-tragedy
Apparently it was sold in the USA and there were victims
Thalidamide. Awful stuff. So sad....
Actually, thalidomide was given to expectant mothers in the U.S. via free samples given to doctors. I have personally met a survivor whose mom was given the drug by her ob-gyn. My husband's father was a salesman for Merrell which was the U.S. distributor. The salesmen had samples to give to doctors. The drug had not been approved by the FDA. When Merrell learned that the horrific side effects were caused by the drug Merrell instructed all the sales staff to destroy all remaining samples. My husband, who was a teen at the time, help his father load the drugs into the incinerator that was in their house. Dad was devastated.
