Patient survey New patient education video Facebook Twitter www.onxlti.com
Results 1 to 11 of 11

Thread: PH: Burning feeling when I inhale and cough when I exhale?

  1. #1
    Join Date
    Oct 2008
    Location
    Saginaw, Michigan
    Posts
    201

    Question PH: Burning feeling when I inhale and cough when I exhale?

    Ok, so I'm 2 and a half months post-op MVR and didn't have such a great post-op echo; which I've heard is not all that uncommon. Indicated moderate-to-severe TR, moderate PH and CHF. Both my cardiologist and surgeon expect this to improve by 6 months post-op and prescribed the following to help me deal with symptoms: Lasix, Lisinopril, Toprol XL. Been on these for almost three weeks now and symptoms are not improving. For example, I have a constant burning feeling in my chest/lungs when I take a breath and when I exhale, I cough. THIS, of course, worsens while I'm lying down. THIS IS NOT INDIGESTION...TOTALLY DIFFERENT. At first, my cardiologist thought it was the Lisinopril but I had it prior to taking. Is this a symtom of PH? My cardiologist and surgeon don't seem to think I need to worry about the PH, saying it will go away with time. I'm not so certain and have learned to question the opinions of my physicians as they have been just plan WRONG in the past. Not sure what to do about this as it isn't getting any better and it's not pleasant to deal with. Just wondering if anyone has experienced this? Nancy, did Joe have this? Thanks, Dee
    11/07: Dual Chamber Pacemaker for Sick Sinus Syndrome
    03/09: Mitral Valve Repair w/ Annuloplasty Ring for Mitral Regurgitation
    07/11: Mitral Valve Replacement for Mitral Stenosis

  2. #2
    Join Date
    Dec 2001
    Location
    On The Hot Seat
    Posts
    25,981

    Default

    My first instinct is, are you around chlorine or ammonia?

  3. #3
    Join Date
    Oct 2008
    Location
    Saginaw, Michigan
    Posts
    201

    Default

    Nope! Nothing like that.
    11/07: Dual Chamber Pacemaker for Sick Sinus Syndrome
    03/09: Mitral Valve Repair w/ Annuloplasty Ring for Mitral Regurgitation
    07/11: Mitral Valve Replacement for Mitral Stenosis

  4. #4
    Join Date
    Dec 2001
    Location
    On The Hot Seat
    Posts
    25,981

    Default

    Ok you got me stumped. I have PH and don't have that sensation. How about I do a bronchoscopy on you?

  5. #5
    Join Date
    Oct 2008
    Location
    Saginaw, Michigan
    Posts
    201

    Default

    Ok. I also should mention that I'm quite SOB and feel congested. Feel like I have an enormous amount of pressure. Not sure what it is either? I am an odd duck. LOL
    11/07: Dual Chamber Pacemaker for Sick Sinus Syndrome
    03/09: Mitral Valve Repair w/ Annuloplasty Ring for Mitral Regurgitation
    07/11: Mitral Valve Replacement for Mitral Stenosis

  6. #6
    Join Date
    Dec 2001
    Location
    On The Hot Seat
    Posts
    25,981

    Default

    I could blame CHF, Pleural effusion, but you'd have pain on inspiration, not burning. I know at times, my heart is so enlarged that it makes everything inside my chest feel cramped. You have something else going on there. Had a Chest xray lately?

  7. #7
    Join Date
    Dec 2001
    Location
    On The Hot Seat
    Posts
    25,981

    Default

    Doing quick search on google produced a few others with the same complaints and no real answers. Some were treated for indigestion, which your sure it is not, some were refered to infectious disease doc to check for mycrotoxins in the lungs. Another was diagnosed as having a swollen rib cage? How that can be, I don't know.

  8. #8
    Join Date
    Feb 2008
    Location
    Canada
    Posts
    2,492

    Default

    Quote Originally Posted by deek View Post
    Ok, so I'm 2 and a half months post-op MVR and didn't have such a great post-op echo; which I've heard is not all that uncommon. Indicated moderate-to-severe TR, moderate PH and CHF. Both my cardiologist and surgeon expect this to improve by 6 months post-op and prescribed the following to help me deal with symptoms: Lasix, Lisinopril, Toprol XL. Been on these for almost three weeks now and symptoms are not improving. For example, I have a constant burning feeling in my chest/lungs when I take a breath and when I exhale, I cough. THIS, of course, worsens while I'm lying down. THIS IS NOT INDIGESTION...TOTALLY DIFFERENT. At first, my cardiologist thought it was the Lisinopril but I had it prior to taking. Is this a symtom of PH? My cardiologist and surgeon don't seem to think I need to worry about the PH, saying it will go away with time. I'm not so certain and have learned to question the opinions of my physicians as they have been just plan WRONG in the past. Not sure what to do about this as it isn't getting any better and it's not pleasant to deal with. Just wondering if anyone has experienced this? Nancy, did Joe have this? Thanks, Dee

    Dee i've got ph and chf and i felt so much worsened when i would lie
    down i went in discribed it as almost indigestion but not and such heaviness
    upon my chest and i had alot of cough while lying down also.

    with me they reminded me what my body had gone through and suggested an x-ray ,they found some fluid in my lungs but wasn't a big deal (yet) they said and i was put back on drugs as you discribed and to use my spirometer
    It took along time to straighten out,but it has.(i think) for me anyhow.
    Maybe someones suggestion think Ross made get an x-ray would be good idea.

    sure hope it gets better for you soon,God bless.

    zipper2 (DEB)
    zipper2(DEB)



    AVR March24th 1992 (Carbomedic Valve)
    MVR January20th 2009 (St Jude)
    INR home testing with coagucheck xs:):)

  9. #9
    Join Date
    Oct 2008
    Location
    Saginaw, Michigan
    Posts
    201

    Default

    Thanks Ross and Deb! I was suppose to have a chest x-ray prior to seeing my cardiologist two weeks ago...but after she saw me, she told me to forget it, that my lungs were clear. She blamed the symptoms on the CHF and said it would improve with the meds. Still hasn't...so I don't know? Maybe I should insist on the chest x-ray, just to make sure. Gosh, I feel like such a pain in the ass. It's always something. Again, thanks for your help Ross and Deb!
    11/07: Dual Chamber Pacemaker for Sick Sinus Syndrome
    03/09: Mitral Valve Repair w/ Annuloplasty Ring for Mitral Regurgitation
    07/11: Mitral Valve Replacement for Mitral Stenosis

  10. #10
    Join Date
    Jan 2008
    Location
    Cuyahoga Falls, Ohio USA
    Posts
    2,680

    Default

    Sure hope you find somthing/someone to help you. Sorry I can not help. Let us know.
    Deb
    Coincidence is Gods way of remaining anonymous.
    AVR 7-6-07 Bovine Pericardial Valve. Akron City Hospital Ablation 6/08, Akron City Hospital

  11. #11
    Join Date
    Jul 2007
    Location
    Canada
    Posts
    5,787

    Default

    Best thing to do is to be a pain in the ass and get an x-ray done. Rather be safe than sorry.
    Hall/Deb - Is this pain worst after eating?
    Laughter is the Best Medicine

    MVR March 30/07 Carbomedics Valve - Said and done in 5 days - Shocked & Dumbfounded
    I've learned..That to ignore the facts does not change the facts

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •