Hi Debbie. We do not have the same condition. Mine is aortic bicuspic with moderate stenosis. I urge you to speak with your doctor also. It will bring you peace of mind and clearer understandings.
That said, I just thought I'd relay my latest situation/frustration so you can compare. 2 months ago I started having the jittery heart you speak of all the time. For years, now, it has just been occuring at scary movies (I'm a wuss!), times of heightened stress or really intense sports events! To feel it all the time started driving me nuts! I went to my GP, she heard a skipped beat, did an EKG, found PVCs and sent me to my cardio for an echo and assessment. The cardio (Stanford educated) put me on Atenolol (tenormin) and had a listen. In my case, she is still hearing what she wants to hear and says the PVC's are nothing to worry about. She concurs that caffeine is a culprit (along with spicy foods and stress). Strangely, she says, every year she get volumes of complaints from November through March about arythmias. She wonders if it is the chocolate, rich diet and stress of the season!
I am still not feeling right. I am going to start another thread about the arythmmias, hopefully our "new" nurse will add to my knowledge. I just don't feel like I understand them well enough.
I guess what I hope to relay here is that you really need to find a cardiologist who you can trust. I went round and round with this one, and she point blank asked me if I was going to decide to trust her. I decided to. This meant letting go of my feeling of control, something my personality is not used to doing! You're a teacher (I'm an elementary substitute). You plan your days to be in control! This is something new, having to let someone else be in control. And you are dealing with some new information that is way out of your league! It's tough to find a happy medium. Hard to budge one iota on the control level and have an educated trust of your doctor. Perhaps you need to try another doctor. Just for a second opinion. This is my second cardio (well, since the stenosis reared its ugly head -- I've known about my BAV for 25 years) and even though it is frustrating (I want it done yesterday!!) I am very VERY glad that I changed to her. In my case, I have time to build this relationship. Not everyone is so lucky.
I feel like I've babbled, here, but I was hoping to help. Let us know what your cardio has to say.
AVR 4/18/06, age 52. Bovine tissue. CE Perimount RSR Model 2800. 23 mm. BAV diagnosed age 27(1981). Moderate stenosis (1.0 cm) 9/03; severe stenosis (.7cm) 12/05, Aortic measure at surgery 4/06, critical (.53 cm)